National Organization for Rare Disorders | NORD
5 days ago · National Organization for Rare Disorders (NORD®) NORD advances practical, meaningful, and enduring change so people with rare diseases can live their fullest and best …
Living with a Rare Disease | NORD
NORD helps those living with rare diseases find patient assistance programs/financial assistance programs and help them get a diagnosis.
Rare Disease Research Grant Program | NORD
Request for Proposals NORD’s Rare Disease Research Grants Program provides seed-money grants to qualified investigators for scientific and/or clinical research. The hope is that these …
What You Should Know About Undiagnosed Rare Diseases | NORD
NORD strongly recommends discussing options to participate in research with your doctor. Research can help identify new diseases, expand our understanding of known diseases, and …
Patient Assistance Programs - National Organization for Rare …
Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, …
Patient Organizations - National Organization for Rare Disorders
Representatives of patient organizations who are interested in listing an organization in the NORD’s Organizational Database (ODB) may contact NORD.
Pontocerebellar Hypoplasia - Symptoms, Causes, Treatment | NORD
Jul 18, 2025 · Learn about Pontocerebellar Hypoplasia, including symptoms, causes, and treatments. If you or a loved one is affected by this condition, visit NORD to find
Rare Disease News - National Organization for Rare Disorders
Aug 21, 2025 · The NORD Rare Disease Scientific Symposium brought together a dynamic community of rare disease clinicians, researchers, and thought leaders for an unforgettable …
Rare Disease Advisory Councils - National Organization for Rare …
NORD supports the establishment of well-organized, high-functioning Rare Disease Advisory Councils in every state. A Rare Disease Advisory Council (RDAC) acts as an advisory body …
Friedreich's Ataxia - Symptoms, Causes, Treatment | NORD
Apr 7, 2025 · Learn about Friedreich's Ataxia, including symptoms, causes, and treatments. If you or a loved one is affected by this condition, visit NORD to find resources